Saturday, November 21, 2015

Give the Kids the World - Florida - Part 2


Ok, so I know our Florida trip was a while back, but as this blog doubles as our family journal you'll just have to see more of some great memories!

A most magical hope-filled wonderland :)
The pillow tree~!
All girls got their own pillow - these sweet pillows have a pocket sewn into the front and back - perfect for your stuffed animal friend or book.  

Our Village Home!
Each family in the village has a child with a life-threatening illness.  It was such a beautiful release from reality.  What a sweet time for sisters to spend together and have such a magical time.  Colt and I were totally pampered as parents to have meals, activities, and love showered on our family.
The girls got the master suite!  A extra large tub and amazingly HUGE shower.
It was so nice to have our own space - complete with washer and dryer and full kitchen!
Summer, Silver and River.

Silver

Summer

River

Oh how I would love the challenge of a flower garden in a place where it rains every day!  
Humidity = amazing flowers!!
The girls would gather the flowers on the ground and make beautiful arrangements :)

Each Make-A-Wish recipient gets their own star - Here River is putting her star in the magic treasure box where the fairy then retrieves it and places it in its own special spot in the castle.  

River pointing to her star - part of the "girl galaxy"






The funnest game!  Hit the spots as they light up.  The one with the most taps wins!
Mommy was the undefeated champion :)



We were tucked in by Miss Merry


Fluffing and Kissing pillows


Give the kids the world is based on candy land - 
We even got our own special "Give the kids the World" version of candy land that we LOVE to play and remember our time there.

One of our favorite times of our entire trip - 
Remote control boats!
Fantastically fun


River's captain whistle








Reindeer family on Christmas in July

We found Miss Merry Again!



Silver's giggles


River's Creativity
Couldn't hula hoop around her waist because of her g-tube.  Where there is a will there is a way.







This sums it all up:  
Nice!!
Thumbs up!

Monday, November 2, 2015

Make a Wish - Destination Florida Part 1

Words cannot describe how wonderful this vacation was!
Karin, River, Colt, Silver, Summer
Our favorite part of the entire trip was Give the Kids the World Pool!
It was wonderfully warm and everyone felt so good in the water we just swam and swam and swam.

Make-A-Wish took care of us every step of the way.  
The only decisions we needed to make were 
1) Date to go
2) How many of us were going.

I agonized over both decisions - we hadn't received our new chemo plan when we needed to schedule the trip.  We had finished the set course of chemo, gone to the end of the known path on our map and the future was unknown.  So...we picked a date and moved forward.  


From the moment we arrived at the airport, for the entire trip we were directed, guided, and taken care of every step of the journey.    
It was SO nice!

It reminded me of the scripture D&C 112:10 
Be thou humble; and the Lord thy God shall lead thee by the hand

River with Captain
Preflight checklist


Silver in the cockpit



At Give the Kids the World pool.
I was pretty bummed when we got close to our vacation and the weather called for every day of rain... thunderstorms every day.   Every day.  What!  While in Florida we realized this is totally normal!  It rains and thunders most every day and then blows over and is beautiful and sunny again.  








Give the kids the World had an Ice Cream Parlor that we just loved!  We had ice cream sundaes by the pool - how cool is that :)  Ice cream for breakfast is such a sweet memory~!

jumping into the pool!


All of the families at Give the Kids the World are Make a Wish recipients - it was so fun to make new friends and be able to understand in a small way what other families have gone through.  It makes me so grateful for friends we have made and to God for helping our paths cross.  




Mermaids!
L-R Summer, Silver and River




We even had a butterfly friend - special memories.
The very simple things of life are most often the most precious.




After fluttering away :(


Make a Wish!

And Let it Fly :)

Friday, October 2, 2015

Easter in the Hospital

 Easter is my favorite holiday!
Spring * Flowers * Bunnies * Chicks  *CANDY!

and General Conference - where we hear from the Prophet and Apostles of the Church of Jesus Christ of Latter-Day Saints.

And most of all the resurrection of Christ

Easter 2015 was special for us in So So many ways!
River was in the hospital after her Major surgery (removed 80% of liver, right diaphragm and 8 parts of right lung).
Easter morning they had a Hospital Egg Hunt.  River had been struggling just to get to the bathroom and back.  We could occasionally get her to take a few extra steps to the edge of the bed or to the door and back.  She had thought about the egg hunt for a day or two and that morning said she would like to go see it.  We unhooked everything that could be unhooked and took the rest with us!

River started in a wheelchair and went to the big lounge on the 3rd floor with the piano.  There were eggs hidden all through the hospital - and this was a stash of hundreds of eggs.  River would point to where she would like to go and Colt would wheel her over.  I would then get the egg and put it in her bag.  She reached for an egg and opened it.  

There were quite a few kids and they were running around gathering eggs as quickly as they could.  She couldn't quite reach one, so decided that she would get up out of the wheelchair to be able to get this egg.  She hesitantly stood and reached for an egg.  And then another, and then another - bending and collecting.  All visible eggs were quickly disappearing.  

Volunteers have been amazing at doing crafts with River, visiting her, bringing in dogs and toy cars.  In general - bringing smiles and cheer with them.

One of our special volunteer friends is Joel.  He does bingo over the television every Wednesday morning with the kids in the hospital.  It took about 6 months for River to smile and laugh at his jokes :)  She was pretty sick for a long time.  She began looking forward to his visits and preparing jokes for him.  His laugh is contagious!

Joel (in green volunteer shirt above) came up to River and said that there was a hall with TONS of eggs still!   There were dozens upon dozens of eggs.  She WALKED slowly down the next hall - and gathered egg after egg.   We were all amazed at her determination.  

Once the throngs of children thinned and disappeared Joel told us that in the hope garden there were still eggs to find.  We went outside - Oh!  What a beautiful, Glorious day to remember Christ's Resurrection.  

“I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live” (John 11:25)

When Christ rose from the grave, becoming the firstfruits of the Resurrection, He made that gift available to all. And with that sublime act, He softened the devastating, consuming sorrow that gnaws at the souls of those who have lost precious loved ones. 
"Sunday Will Come" Joseph B. Wirthlin (October 2006)
Of the Quorum of the Twelve Apostles

I know that our family is Eternal.  Temples hold the sealing power of eternity. 

River kept going around and around and around the garden gathering eggs.  The volunteers would place eggs behind her - and would encourage her to "Go around again!" And again.  And again.
They realized what a HUGE accomplishment this was for her to be up out of bed and kept her going.  How grateful I am to all the volunteers for their service in our behalf.  


River taking notes in her journal during General Conference.

Easter is also a time for General Conference - held twice a year.
Held twice a year in April and October - in fact October 3rd and 4th - yes today and tomorrow!
It is a special, sacred time for our family to be able to hear from the Prophet and apostles.  
Their messages from God always uplift and strengthen me.  
I invite you to watch it live with us Saturday from 10 - noon  (MT)  and again from 2 to 4
And Sunday the same 10-noon and 2:00 to 4:00
You can watch it live - go to lds.org for the link.  
Conference will also be available on lds.org after it is broadcast - so if you miss it, you can always catch it later.  I find the spirit whisper to my soul of important truths and messages God would have us hear today.

The messages from General Conference are available a month after conference in printed form.  If you would like a copy - I would be happy to mail you one.  Just email me at karin293@yahoo.com to request a copy.

What we believe:

The authority of God to organize His Church and perform ordinances of salvation was lost because of apostasy after the death of Jesus Christ and His Apostles in the first century A.D. However, it was restored by the Lord to Joseph Smith through heavenly messengers during the 19th century.

The keys of the priesthood are the right to preside and direct the affairs of the Church within a jurisdiction. Jesus Christ holds all the keys of the priesthood pertaining to His Church. He has conferred upon each of His Apostles all the keys that pertain to the kingdom of God on earth. 

Amos 3:7"Surely the Lord God will do nothing, but he revealeth his secret unto his servants the prophets."

Amos 3:7Apostles are called of God: ‘Ye have not chosen me, but I have chosen you, and ordained you’ (John 15:16)

Here are some abbreviated snippets of a few talks of April Conference that meant so much to me!

Blessings of the Temple

President Thomas S. Monson
As I think of temples, my thoughts turn to the many blessings we receive therein. As we enter through the doors of the temple, we leave behind us the distractions and confusion of the world. Inside this sacred sanctuary, we find beauty and order. There is rest for our souls and a respite from the cares of our lives.
As we attend the temple, there can come to us a dimension of spirituality and a feeling of peace which will transcend any other feeling which could come into the human heart. We will grasp the true meaning of the words of the Savior when He said: “Peace I leave with you, my peace I give unto you. … Let not your heart be troubled, neither let it be afraid” (John 14:27).
Such peace can permeate any heart—hearts that are troubled, hearts that are burdened down with grief, hearts that feel confusion, hearts that plead for help. …
My brothers and sisters, in our lives we will have temptations; we will have trials and challenges. As we go to the temple, as we remember the covenants we make there, we will be better able to overcome those temptations and to bear our trials. In the temple we can find peace.

The Lord Is My Light

Elder Quentin L. Cook
Of the Quorum of the Twelve Apostles
If the grim realities you are facing at this time seem dark and heavy and almost unbearable, remember that in the soul-wrenching darkness of Gethsemane and the incomprehensible torture and pain of Calvary, the Savior accomplished the Atonement, which resolves the most terrible burdens that can occur in this life. He did it for you, and He did it for me. He did it because He loves us and because He obeys and loves His Father. We will be rescued from death—even from the depths of the sea.
Our protections in this life and for eternity will be in individual and family righteousness, Church ordinances, and following the Savior. This is our refuge from the storm. For those who feel they are alone, you can stand resolutely in righteousness knowing that the Atonement will protect and bless you beyond your ability to fully understand.
We should remember the Savior, keep our covenants, and follow the Son of God as the young sunflower follows the sunshine. Following His light and example will bring us joy, happiness, and peace. As Psalm 27 and a favorite hymn both proclaim, “The Lord is my light and my salvation.”

Therefore They Hushed Their Fears

Elder David A. Bednar
Of the Quorum of the Twelve Apostles
Trust and confidence in Christ and a ready reliance on His merits, mercy, and grace lead to hope, through His Atonement, in the Resurrection and eternal life (see Moroni 7:41). Such faith and hope invite into our lives the sweet peace of conscience for which we all yearn. The power of the Atonement makes repentance possible and quells the despair caused by sin; it also strengthens us to see, do, and become good in ways that we could never recognize or accomplish with our limited mortal capacity. Truly, one of the great blessings of devoted discipleship is “the peace of God, which passeth all understanding” (Philippians 4:7).
The peace Christ gives allows us to view mortality through the precious perspective of eternity and supplies a spiritual settledness (see Colossians 1:23) that helps us maintain a consistent focus on our heavenly destination. Thus, we can be blessed to hush our fears because His doctrine provides purpose and direction in all aspects of our lives. His ordinances and covenants fortify and comfort in times both good and bad. And His priesthood authority gives assurance that the things that matter most can endure both in time and in eternity.